Speakers & Program
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Conference activities beginning at 1:00pm on Friday, March 18 will take place at the Bryan University Center at Duke on Science Drive. On Saturday, March 19 and Sunday, March 20, conference sessions will be held at Duke University's Fuqua School of Business next to the R. David Thomas Conference Center, also on Science Drive. Breakfast and lunch on Saturday and Sunday will be held in the Thomas Center dining room. Saturday dinner is "on your own." See maps and parking information on the Travel and Lodging page.
Keynote
Ralph Snyderman, MD
Ralph Snyderman, MD is Chancellor Emeritus and James B. Duke Professor of Medicine. He served as Chancellor for Health Affairs and Dean of Duke University’s School of Medicine from 1989 to 2004. During this time, he oversaw the development of the Duke University Health System and served as its first President and Chief Executive Officer. A former chair of the Association of American Medical Colleges, Dr. Snyderman has taken an active role in promoting "prospective health care" as a rational approach for personalized medicine. He is the founder of Proventys, a healthcare technology company committed to advancing personalized medicine through validated predictive diagnostics delivered at the point of care.
David Ewing Duncan
David Ewing Duncan is an award-winning, best-selling author of seven books published in 19 languages; he is also a journalist and a television, radio and film producer and correspondent. His most recent book is the bestseller Experimental Man: What one man's body reveals about his future, your health, and our toxic world. He is Chief Correspondent of National Public Radio's Biotech Nation and the Director of the Center of Life Science Policy at UC Berkeley.
Charles M van der Horst, MD
Charles M van der Horst, MD is Professor of Medicine at the University of North Carolina at Chapel Hill and Director of the AIDS Clinical Trials Unit at the University of North Carolina Center of AIDS Research. He has been conducting HIV/AIDS clinical research since 1986. Since 2001 he has been working in South Africa and Malawi conducting clinical research and enhancing the care of patients with HIV infection. His research interests include the ethics of research and clinical medicine globally.
Mark G. Kuczewski, PhD
Mark Kuczewski is currently the President of the American Society for Bioethics and Humanities (ASBH). He is Director of the Neiswanger Institute for Bioethics and Health Policy at Loyola University Chicago Stritch School of Medicine. His current research interests include clinical ethical decision making, bioethics education, health disparities, disability ethics, the process of informed consent, research ethics, and teaching teamwork across health-care professions.
The Nancy Weaver Emerson Lecture
Jeremy Sugarman, MD
Jeremy Sugarman, MD conducts both theoretical and empirical research in medical ethics. His work concentrates on informed consent, research ethics, and the ethical issues associated with emerging technologies. He is the author of over 175 publications in peer-reviewed journals. He is currently Chair for the Ethics Working Group of the HIV Prevention Trials Network, the Ethics Officer for the Resuscitation Outcomes Consortium, and Co-Chair of the Johns Hopkins’ Embryonic Stem Cell Research Oversight Committee.
Lawrence Kaplow
Lawrence Kaplow is an American television writer and producer most notable for his work on the FOX series House. He won the 2005 Writers Guild of America Award for “Outstanding Television Script, Episodic Drama” for the House episode “Autopsy” (2.02). He was writer/co-executive producer for the fifth season of House. In addition, Mr. Kaplow has written for Family Law, Hack and K-Ville.
Panels and Seminars
Karla Holloway, PhD
Karla Holloway is a James B. Duke professor of English and professor of Law. She is on the Greenwall Foundation Advisory Board in Bioethics. She is an affiliated faculty with the Duke Institute on Care at the End of Life and the Trent Center for Bioethics and Medical Humanities. She is founding co-director of the John Hope Franklin Center and the Franklin Humanities Institute. She has written eight books, including Private Bodies/Public Texts: Race, Gender, & a Cultural Bioethics.
Misha Angrist, PhD
Misha Angrist is an Assistant Professor of the Practice at Duke University. He is interested in the intersection of genomes and society, especially in the field of personal genomics. He researches personal genomics from technological, commercial and individual perspectives, and was one of the first 10 participants in the Personal Genome Project. Dr. Angrist received his MS from the University of Cincinnati, MFA from the Bennington Writing Seminars, and PhD from Case Western Reserve University.
Eric Juengst, PhD
Eric Juengst is the Director of the UNC Center for Bioethics with joint appointments in Social Medicine and Genetics. He received his B.S. in Biology from the University of the South in1978, and his Ph.D. in Philosophy from Georgetown University in 1985. He has taught medical ethics and the philosophy of science on thefaculties of the medical schools of the University of California, San Francisco and Penn State University. In addition, from 1990 to 1994, he served as the first Chief of the Ethical, Legal and Social Implications Branch of the National Center for Human Genome Research at the U.S. National Institutes of Health. Dr. Juengst's research interests and publications have focused on the conceptual and ethical issues raised by new advances in human genetics and biotechnology.
Allen Buchanan, PhD
Allen Buchanan is the James B. Duke Professor of Philosophy at Duke University. He is also a distinguished research associate at the Uehiro Centre for Practical Ethics, University of Oxford. Buchanan's research is in political philosophy, with a focus on international issues, and bioethics, with a focus on the ethics of genetic interventions with human beings. His most recent book is Human Rights, Legitimacy and the Use of Force (2010). He is also coauthor of Deciding for Others: The Ethics of Surrogate Decision Making (1989) and (with Dan W. Brock, Norman Daniels, and Daniel Wikler) of From Chance to Choice (1999). Dr. Buchanan serves on the editorial advisory board of the Council's journal, Ethics & International Affairs. He received his B.A. from Columbia University, and his PhD from the University of North Carolina at Chapel Hill.
Amy Laura Hall, PhD
Amy Laura Hall is the Associate Professor of Christian Ethics at the Duke Divinity School. She has served on the Steering Committee of the Genome Ethics, Law, and Policy Center and as a faculty member for the FOCUS program of the Institute on Genome Sciences and Policy. Hall served on the Bioethics Task Force of the United Methodist Church, and has spoken to academic and ecclesial groups across the U.S. and Europe. In 2009-2010, she presented on social-Darwinism at the American Academy for the Advancement of the Sciences, served as a consultant to the World Council of Churches meeting on bioethics in Volos, Greece, presented keynote lectures at the Center for Bioethics and Human Dignity and Point Loma Nazarene, and gave the Phillip Wogaman Lecture at Foundry UMC. Amy Laura Hall is the author of Kierkegaard and the Treachery of Love, Conceiving Parenthood: The Protestant Spirit of Biotechnological Reproduction, and numerous scholarly articles in theological and biomedical ethics.
Stuart Rennie, PhD
Stuart Rennie is Research Assistant Professor in the Department of Social Medicine and Faculty Associate of the Bioethics Center at the University of North Carolina-Chapel Hill. He is co-Principal Investigator of a NIH/Fogarty International Center funded bioethics capacity-building project in the Democratic Republic of Congo and Madagascar, co-Chair of the UNC Behavioral Institutional Review Board and runs the Global Bioethics Blog. In 2009, he prepared (with Jeremy Sugarman) the revised research ethics guidance for the HIV Prevention Trials Network (HPTN).
Anthony So, MD, MPA
Anthony So is the Director of the Program on Global Health and Technology Access at Duke University’s Sanford Institute on Public Policy. His global health research focuses on globalization and health equity, technology access for the poor with emphasis on ownership of knowledge, and tobacco control. Prior to joining Duke University, Dr. So was the Associate Director of the Rockefeller’s Foundation Health Equity program where he pioneered the foundation’s policies on access to medicine’s policy in developing countries, especially in regards to HIV/AIDS.
Sandy Smith-Nonini, PhD
Sandy Smith-Nonini is an Adjunct Assistant Professor of Sociology and Anthropology at University of North Carolina Chapel Hill. Her studies encompass the anthropology of health and medical policy and cultural politics of development and globalization. Currently, her research focuses on farm labor organization and occupational health of Latino immigrants to North Carolina and a comparative study of institutional responses to tuberculosis epidemics in New York City and Lima, Peru. Prior to her research experience, Dr. Smith-Nonini served for ten years as a journalist reporting on human and health rights in El Salvador in the 1980s.
Anne Lyerly, MD
Anne Lyerly is an Associate Professor of Social Medicine and Associate Director of the Center for Bioethics at University of North Carolina at Chapel Hill. Her research interests focus on bioethics, health policy and applications of feminist theory. Examples include the ethics of decisions regarding hormone therapy, women with HIV, infertility treatment, prenatal and preimplantation genetic diagnosis, childbirth practices and research using the products of conception. She has an MA in philosophy from Georgetown and completed a fellowship in Bioethics and Health Policy at Johns Hopkins University.
Robert Cook-Deegan, MD
Bob Cook-Deegan is the Director of the Center for Genome Ethics, Law & Policy at Duke University. He was previously director of the Robert Wood Johnson Foundation Health Policy Fellowship program at the Institute of Medicine. He is the author of The Gene Wars: Science, Politics, and the Human Genome and over 200 articles. Dr. Cook-Deegan was a member of the Board of Directors of Physicians for Human Rights from 1988-1996, with whom he participated in human rights missions to Turkey, Iraq and Panama.
Gopal Sreenivasan, PhD
Gopal Sreenivasan is the Crown Professor of Ethics and Professor of Philosophy at Duke University. His primary focus is in moral and political philosophy, particularly, bioethics, philosophy of law, and moral psychology. Some of his publications in regards to bioethics include “Health Care and Equality of Opportunity” (Hasting Center Report, 2007), “Ethics and Epidemiology: Residual Health Inequalities” (Public Health Ethics, 2009), and “Ethics and Epidemiology: The Income Debate” (Public Health Ethics, 2009). Prior to joining Duke in 2008, Dr. Sreenivasan taught at Princeton University and the University of Toronto. He was also a senior fellow at the National Institute of Health’s Department of Clinical Bioethics.
Mildred Cho, PhD
Mildred Cho is an Associate Professor in the Division of Medical Genetics of the Department of Pediatrics at Stanford University, and Associate Director of the Stanford Center for Biomedical Ethics. Before coming to Stanford, Dr. Cho was Assistant Professor of Bioethics in the Center for Bioethics at the University of Pennsylvania. She is a member of national advisory boards for the National Human Genome Research Institute, the Board of Reviewing Editors of Science magazine, and the Archon Genomics X Prize. She has also served as a member of the working group on synthetic genomes for the U.S. Department of Energy.
Timothy Caulfield, LLM, FRSC
Timothy Caulfield has been Research Director of the Health Law Institute at the University of Alberta, since 1993. He has been a visiting scholar at the Hasting Center for Bioethics in New York, the University of Houston’s Health Law and Policy Institute, and at Stanford University’s Program in Genomics, Ethics and Society. He has been a visiting scholar at the Hasting Center for Bioethics in New York, the University of Houston’s Health Law and Policy Institute, and at Stanford University’s Program in Genomics, Ethics and Society. He is the recipient of an Alberta Heritage Foundation for Medical Research Health Research Scholarship entitled “Regulating the ‘Genetic Revolution;’” a Genome Canada project on the regulation of genomic technologies.
Daniel Vallero, PhD
Daniel Vallero is an adjunct faculty member of Duke University’s Civil and Environmental Engineering Department. At Duke, he leads the Engineering School's "Ethics across the Curriculum," and co-facilitates the Responsible Conduct of Research (RCR) training for all Duke Ph.D. Dr. Vallero conducts research and develops teaching approaches related to macroethics of emerging technologies. He was a staff member of the Energy and Power Subcommittee of the U.S. House of Representatives, where he served as the technical advisor on global climate change issues. He is the author of numerous journal and encyclopedia articles. In addition, he has written seven textbooks related to environmental chemistry, risk assessment and engineering.
Walter Sinnott-Armstrong, PhD
Walter Sinnott-Armstrong is the Chauncey Stillman Professor of Ethics at Duke, and part of the Kenan Institute of Ethics, the co-director of the MacArthur Law and Neuroscience Project, and a co-investigator at the Oxford Centre for Neuroethics. His current work is on moral psychology and brain science as well as the uses of neuroscience in legal systems. Dr. Sinnott-Armstrong is the author of Morality Without God? and Moral Skepticisms and editor of Moral Psychology, volumes I-III. He has received fellowships from the Harvard Program in Ethics and the Professions, the Princeton Center for Human Values, the Oxford Uehiro Centre for Practical Ethics, the Center for Applied Philosophy and Public Ethics at the Australian National University, and the Sage Center for the Study of the Mind at the University of California, Santa Barbara. Dr. Sinnott-Armstrong earned his bacherlor’s degree from Amherst College and his doctorate from Yale University.
Dennis Clements, MD, PhD, MPH
Dennis Clements is the Chief of Primary Care Pediatrics at Duke University Medical Center, the Director for Latin American and Caribbean Studies at Duke University, and a Professor in the Department of Pediatrics, Community and Family Medicine, Nursing and Medicine at Duke University Medical Center. He is also an Adjunct Professor of Epidemiology at the University of North Carolina School of Public Health at Chapel Hill. His clinical interest includes: general pediatrics, infectious diseases, epidemiology, vaccine research, managed care health issues, and global health. His research interests include: vaccine research, infectious disease epidemiology, cost effectiveness of vaccination strategies, Latino health issues, medical Spanish education, cultural sensitivity, health care delivery systems, and health manpower needs in the third world.
Arachu Castro, PhD, MPH
Arachu Castro is an Assistant Professor of Social Medicine in the Department of Global Health and Social Medicine at Harvard Medical School, a Senior Advisor for Mexico and Project Manager for Guatemala at Partners in Health, and a Medical Anthropologist in the Division at the Department of Medicine at Brigham and Women’s Hospital in Boston, Massachusetts. Her research interest includes: how social inequalities are embodied as differential risk for pathologies common among the poor and how health policies may alter the course of epidemic disease and other pathologies afflicting populations living in poverty. As a medical anthropologist, Dr. Castro works primarily on infectious disease and women’s health in Latin America and the Caribbean. She has conducted field work in: Mexico, Argentina, Haiti, Cuba, Puerto Rico, Venezuela, Colombia, Peru, and the Dominican Republic.
Jeffrey Wilkinson, MD
Dr. Wilkinson is Co-Director of the Duke Center for Minimally Invasive Gynecologic Surgery and Clinical Assistant Professor of Urogynecology at Duke University School of Medicine. He completed his medical training at the John’s Hopkins University School of Medicine and received his bachelor’s degree from the Interdisciplinary Studies program at UMBC. His clinical and research interests include childbirth injury, ethics and global women's health, minimally invasive gynecologic surgery, obstetric fistula, and maternal morbidity and mortality in developing countries. Dr. Wilkinson has had close affiliations with United Nations Population Fund (NFPA) and involvement with issues concerning obstetric fistula in developing countries, specifically in Africa.
Jennifer Hawkins, PhD
Jennifer Hawkins is an Associate Research Professor of Philosophy at Duke University. She was formerly at the University of Toronto where her research interests include: moral psychology, normative moral theory, and biomedical ethics. In the field of biomedical ethics, she co-authored “Clarifying Confusions about Coercion,” Hastings Center Report 35 (2005) with Ezekiel Emmanuel. Further, she also co-edited Exploitation and the Problems of Clinical Research in Developing Countries (Princeton University Press, 2008.) She completed a postdoctoral fellowship in ethics at the Department of Clinical Bioethics (NIH) and was a visiting faculty fellow at Harvard’s Edmond J. Safra Foundation Center for Ethics. At the University of Toronto, she was an Advisory Board Member of the Joint Center for Bioethics and an executive member of the Collaborative Program in Bioethics.
Kieran Healy, PhD
Kieran Healy is a Visiting Associate Professor in Sociology and the Kenan Institute for Ethics at Duke University. His research interests are in economic sociology, the sociology of culture, the sociology of organizations, and social theory. He is the author of Last Best Gifts: Altruism and the Market for Human Blood and Organs. In 2002, he was awarded the American Sociological Association's Dissertation Award for "Exchange in Blood and Organs." He was awarded a Residential Fellowship with the Center for Advanced Study in the Behavioral Sciences at Stanford University in 2008. Healy earned an undergraduate degree in sociology and geography at the National University of Ireland (Cork) and a Ph.D in sociology from Princeton University. His current focus is on the moral order of market society, the effect of quantification on the emergence and stabilization of social categories, and the link between these two topics.
Benjamin Meier, JD, LLM, PhD
Ben Meier is an Assistant Professor of Global Health Policy at the University of North Carolina at Chapel Hill. He conducts interdisciplinary research in the field of international law, public policy, and global health to examine the harmful effects of neoliberal globalization policy on individual health status and national health systems. In collaboration with UNC’s Department of Public Policy and Gillings School of Global Public Health, Dr. Meier is working to advance the frameworks for global health policy. He is also a Scholar at Georgetown Law School’s O’Neill Institute for National and Global Health Law and a Faculty Fellow at UNC’s Institute for Global Health and Infectious Disease. His publications on the evolution of human rights and global health governance have appeared in multiple law journals.
Student Presentations
PERSONAL BIOETHICS
Philosophy and Political Science
The Right-to-die: Valuing Quality over Quantity
Human Biology
The Potential of Potentiality: How a Simple Division Can Define the Moral Value of the Human Embryo
Biology
Bioethical Perspectives on Population Screening for Missense Mutations in the HFE Gene Associated with Hereditary Hemochromatosis
Psychology
Bioethics and Drugs: The Way Pharmaceutical Companies Violate the Three Principles of Bioethics
Sociology
In Constant Perfection: An Ethnography of Physician Writers' Narratives on
Power in Contemporary U.S. Medicine
Political Science, Medical Humanities
Looking Ahead on Synthetic Biology: Concerns and Risks for Individuals and Societies
Philosophy, Biology
Empathy and eHealth : Personal and Global Ethics in the 21st Century Clinic
Biology
Making Girls into Girls? A Presentation on the FetalDex Controversy
GLOBAL BIOETHICS
Global Health and Infectious Disease
The Global Health Work of Philanthropic Grant-Making Foundations: Unintended Consequences and Ethical Implications
Public Health Studies, Anthropology
A Clash of Epistemologies: Biopiracy and Indigenous Peoples
Biology
Evolving Vaccine Trials: Adaptive Informed Consent in the Global Context
Political Science
The Devil is in the Details: Research Ethics Theory and Practice in Non-Western Nations
Women’s and Gender Studies
The Narrative Underpinnings of HIV Prevention: Looking Ahead to Pre-Exposure Prophylaxis
Medical Humanities
Green-Skinned: Why Organ Trafficking Profits from the Exploitation of the Impoverished
Philosophy
Globalizing Research Ethics: Justice & Biomedical Research in Developing Countries
